In One Week It Will Be A Year

How strange to be starting chemotherapy for ovarian cancer only a week earlier than the first anniversary of my miscarriage. The morning I saw the blood that told me the ultrasound really had been right, even as I had numbly gone to the ladies as the tech pretended nothing was wrong before looking one last time, I knew before she told me.

All I remember thinking was, “It’s dead, get it out. I can’t carry a dead baby inside me.” For 19 weeks I had carried the fetus that now lay wasting inside me. At this point, there were only two realistic options, inducing labor, or a D&E. Inducing labor may not have completely rid the uterus of the remains, a D&C might have had to happen despite.

To me, the idea of being hopped up to deliver a dead baby seemed nothing short of torture. And, I was lucky since it was before 22 weeks. In the backwards state of Michigan, there is no other option past 22 weeks. It doesn’t matter that the fetus is dead. All other options are illegal despite some of them being safer. The legislators who passed such heinous legislation are guilty of misogyny as far as I am concerned, and I would not want to be them when they face the Judge of us all.

The fetal tissue was tested and came back as normal. A perfectly normal fetus had died. I wanted answers and sought out Dr. Professor as a hematologist. It turned out I did have two thrombophilias. I had railed to be tested prior to doing my first cycle, but no one took my concerns seriously despite a family history of miscarriage and stillbirth. (And, yes, this still angers me to some degree. The anger only mitigated by the fact that they all assumed first trimester miscarriages, never bothering to ask when the miscarriages had occurred – all in the second trimester.)

I had hoped that the next time I saw Dr. Professor it would be to manage happier news. But, instead, I start chemotherapy for a disease that has forever robbed me of the opportunity to carry a child to term. Forever is gone the ability to build a family without lawyers and courtrooms and social workers – and all the expense that implies.

Each dream I have ever tried to build has been completely destroyed by things outside of me. I know there is no rhyme or reason to why things happen. They just happen.

It is only cruelty to say to someone, “It is meant to be,” or “Everything happens for a reason.” They say those things only to comfort themselves – knowing or not, their words just hurt the ones they are directed act. So, if you ever feel yourself starting to say something like that to someone, STOP! You will only be adding to the pain. There is no “meant to be” and, no “reason.”

It is odd that not only is it so close to the one-year anniversary of my miscarriage but I also get the cancer with the treatment that has a very high risk of allergic reaction. If I truly thought there was a “reason” the only reason I could come up with would be that God/The Universe/Fate/Whatever hates me.

After working in a field with abused children for a short time in college, I already thought that if there was a reason or a “meant to be” then God/The Universe/Fate/Whatever was the cruelest bastard to ever exist and deserved nothing. The only way I could reconcile it was to know that intervention is rarer than a yellow sapphire and only in the most dire circumstances – like when the human race was about to blow itself up.

I can understand why many former religious become atheists. It is a well-reasoned thought process that takes them there. I’m not there, but, my belief in a mostly non-interventionist God has been pretty much confirmed. And, nothing short of an impossible miracle will change my mind.

Synchronicity, Anaphylaxis, CarboTax, and Chemo Thursday : This Is In My RSS Feed

I was feeling comfortable after my Monday meeting with Ms. Clarity and The Chemo Nurses. I got my calendar, and Tuesday got my go ahead to move forward. The port worked well – and they used a numbing agent so I didn’t feel it when she put the needle in to take the blood for my CBC, CA-125, BRCA 1/2, and HNPCC (Lynch Syndrome) tests.

While I was there, Ms. Clarity spoke with my allergist who advised the addition of an H1 blocker as well as an H2 blocker and steroids to my overall protocol. This is a double whammy against histamine production – to way oversimplify things. I haven’t found a good explanation online from a trusted source. Anyway, histamine is what causes allergic symptoms to occur. By blocking those from occurring, the hope is that no reaction will occur – or, if a reaction does occur it will be quickly counteracted.

At this point, I’m feeling a little nervous due to my reading up on carbotax and my own medical history. I have been living a bit too much of the outlier life for my comfort when it comes to medicine. So, just as I am about to embark on the chemotherapy protocol with minimal worry, what comes across my allergy medical news feed, not once, but twice:

Fatal Allergic Reactions Triggered By Common Chemotherapy Drug

A new study from the Research on Adverse Drug Events and Reports (RADAR) pharmacovigilance program at Northwestern University Feinberg School of Medicine identified 287 unique cases of hypersensitivity reactions submitted to the FDA’s Adverse Event Report System between 1997 and 2007 with 109 (38 percent) deaths in patients who received Cremophor-based paclitaxel, a solvent-administered taxane chemotherapy. — Medical News Today

The article went on to state that certain of these reactions happened despite pre-medication. If you are atopic enough, it doesn’t really matter, and I know this. Doing a quickie search with the terms “anaphylaxis taxol” search at PubMed (the Internet face of the older face of Medline), you get 41 hits with the oldest from 1993. Some of them are more encouraging than others, but the overall outlook is less than bright.

Even the rapid desensitization information I came across advised one-on-one nursing care with a resuscitation team on site. Desensitization doesn’t normally include one-on-one nursing. Of course, rapid desensitization is more dangerous.

Now, I dislike it when synchronicity is being too active. That just makes me nervous. I don’t trust synchronicity. Like any irrational human being – and all of us are irrational to some degree, no matter our education or claims otherwise – I find this a little bit unnerving. The information wasn’t particularly new, but the timing couldn’t have been weirder.

Do I believe this is a sign from the universe? Not really. But, it does make one ponder why this was in my allergy feed at just this moment in time. That is just weird.

Inner Christianity : A Guide to Esoteric Tradition (Audiobook)

Inner Christianity : A Guide to Esoteric Tradition (Audio Edition) written and read by Richard Smoley is a meandering journey from the earliest unsanctioned spiritual teachings of Christianity to the late 20th century. His meanderings include the controversies surrounding the nature of Christ, the spiritual questions behind the debate of the Apostle’s Creed, and even touches on the symbolism versus reality of the transubstantiation that is at the heart of the divide between many Christian sects.

The one weakness of the book is that it sometimes assumes that you know the basic tenets of traditional “churched” Christianity, and this has become less true for the modern reader. These tenets are easily looked up, but may, without a guide, lead the neophyte seeker down the paths of various catechisms that only serve to hide the inner workings that a seeker seeks.

This book is aimed at the neophyte with some knowledge of Christianity. With that audience in mind, it does an admirable job of taking us through, not the chronological order, but the spiritual order of the history behind the various Gnostic thoughts and how they have manifested for either the good or the bad. (Sometimes, Gnostics seemed to be there to reflect the reality of those in authority being quite apart from the reality of the catechism.)

Gnostic Christians are equally at home with Sufi, Buddhist, Hindu, or any other seeker because they see that the tool used to reach spiritual enlightenment is just that, a tool. Christianity differs from some of its brethren in the emphasis on the personal salvation and connectedness to an overall sentient power.

51P54X7H09LSmoley touches on such controversies as the fall of SOPHIA and the DEMIURGE. Showing how these radical ideas challenged the early church. Many of the great thinkers of early Christianity were, in reality, Gnostics. The Gnostic schools spread throughout the Eastern part of the world – reaching as far as China. There are still wild monks in India who are Christian Gnostics of the Thomasine descendan.

This is a very good introduction to gnosticism. Smoley does not say, “trust this teacher or school of thought.” Rather, he implores the listener to seek enlightenment through study, prayer, and supplicance. He does point out that the Eastern Orthodox Churches – perhaps because of their lack of political power – preserved gnosticism much better than their Western counterparts. Much of Western Gnosticism is derived from the Reformation, but not all.

This is definitely worth a listen if you wish to challenge the depths of your beliefs.

Ezekiel 7:19

They shall cast their silver in the streets, and their gold shall be removed: their silver and their gold shall not be able to deliver them in the day of the wrath of the LORD: they shall not satisfy their souls, neither fill their bowels: because it is the stumbling block of their iniquity.

Ever since the banker bailout started, this Bible quote is all that keeps coming to my mind unbidden.

When I listen to the U.S. Congress and the Parliaments of the World speaking of how they must save themselves, Ezekiel 7:19 comes to mind.

When I hear the conspiracy theorists speaking of the “safety” of gold – even prior to the gold and silver markets tanking – Ezekiel 7:19 forms.

I do not think we are in those times some groups believe hail the end of all things. But, there is, in all religious thought, an idea that cycles, at least, must end. Even in Hinduism there is a thought of Ages. Each Age must come to an end so that the new Age may begin. As with all births, it tends to be messy and painful.

And, then, I think of what I remember when I was indulging in eschatological studies. How little remembered Ezekiel 7:19 is among modern Evangelicals? Why do they encourage all to stock up on gold and silver when we are warned how useless the treasures of this world are?

I am in no way saying not to use your money wisely despite the markets attempts to destroy what we have. Rather, I’m saying that we, as Christians must never, ever, trust in money more than God. The Lord God will see to us all if we trust in Him.

To Trust in God does not mean not using the talents we have been given! Remember the parable of the talents! Rather, it means that though we live in this world, we never sacrifice what is stored up in the world to come by hoarding to the detriment of others. And, we must use those talents in service to Him. This does not mean becoming a nun, priest, preacher, or other religious, necessarily, but to serve one another in whatever way we can.

This does not include hoarding gold and silver – or any other monies for our own use.

Of course, if you believe these are the end times – end of this age, even – then why would you try to store up gold and silver when you have been warned that it will be worth nothing? That somehow, the metals that have underpinned economic well-being for millenniums is worth nothing?

I think that it is worth noting Ezekiel 7:19 whenever you start to think to hoard gold and silver because you believe society is going to collapse. What good will gold and silver bring if society collapses?

You cannot till gold and silver.

You cannot eat gold and silver.

Gold and silver are just metals that we have ascribed value to because it is pretty. It is better to invest in people and skills than in gold and silver. When societies collapse, it is those with the right networks and skills that survive – not those who have the gold and silver (or shells, or whatever else is the symbol of wealth.)

e-Sword – Great Scripture Study Tool

Since about 2000 Rick Meyers’ created e-Sword (http://www.e-sword.net/), a program for the study of the Bible. It is illegal to sell it – but anyone can distribute this tool. He went through open source Bibles, Commentaries, Dictionaries, Maps and Illustrations that are available to help in Scriptural studies.

I’ve been using this off and on since at least 2002. It is a great study tool and help when trying to remember what passage it was that said that?

There is a plethora of Bibles in almost any language you can imagine. I just wish he had a zipped package for “all the free stuff” – even if he charged for the zip. (I spent almost 6 hours downloading everything, but I am still reviewing the many features this cool tool has.) Rick Meyers’ deserves financial and publicity help to keep up his good work with e-Sword from anyone who believes in spreading the Gospel.

One feature I am going to start using is the Daily Devotionals option – except I can’t decide which of the 4 free ones I should be using!

Faith, Unhealed Wounds, and Empathy

There are wounds that never heal, at least not completely. These wounds linger and act up when we are least expecting them. No one wants these wounds – physical, spiritual, emotional, or mental – to affect their behavior, but they do. Sometimes those effects are without the knowledge of the sufferer. Subtle things that others may notice. A small silence or longing look when a particular topic comes up.

Most of the unhealed wounds inside of people come unheeded and unexpected. Triggered by situations that cannot be anticipated. Often the wounds are so unique to the individual that no one else can truly understand the pain the sufferer is feeling. There are many such wounds:

  • Death of a child;
  • Cancer;
  • Infertility;
  • Diagnosis of self or loved one with a rare incurable disease;
  • Side-effects of a disease;
  • Loss of a beloved job; and,
  • many, many more that I can’t even begin to list.

So many of those around us can’t relate to these things at all. We feel abandoned and alone. People give us unwelcome advice or approach with unwelcome questions. No one seems to be able to respond appropriately to us. There is a disconnect. Perhaps the disconnect is a defense mechanism. Often, those suffering from these wounds lash out at first and wish they could undo that because, maybe, just maybe, that person would be a worthwhile friend – but the hurt and abandonment when the novelty wears off for that person is like ripping away at that wound over and over again. This may be a way to shield ourselves from feeling all of that pain. Empathy is very, very hard for the majority of us when we have no frame of reference. But, there is someone who does empathize and know our pain.

Imagine taking on all the pain and mistakes of the world. That is what Christ did for all of us when He took up the Cross. He did choose the path He took. He even doubted the wisdom of His choice in Gethsemane. Who wouldn’t? He prayed that “this cup pass from me.” (Mat 26:39). We all want to avoid the pain. But our salvation would not have been bought without His choice to continue.

We don’t always choose our paths. Sometimes our paths choose us. The best explanation I am aware of is one I read in one of Madeleine L’Engle’s books. She described life as a type of poem – a sonnet – within which we get to write whatever we want provided we follow the structural rules. This is how free will and destiny are entwined. Just as Jonah could not escape the whale, and Isaiah had to prophesy, we are called to do what we must. We can choose to make the journey harder than it has to be, or we can choose to try and have faith. And, of course, there is the story of Job who suffered to prove that man could remain faithful in the direst of circumstances. (Yes, I know he ultimately did rail against God, but Job never stopped believing in God.)

Now, do not mistake my saying “have faith” for forgetting the pain of all of the unhealed wounds. It isn’t like that. Faith sometimes is nothing more than knowing God knows your pain, and cries with you because you are His child and He loves you. Just as any parent knows that you cannot protect a child from all the pain in this world, God knows that for us to grow we may have to experience things that He would rather we didn’t – but without the suffering we would learn nothing.

These are not words I particularly want to hear. I suffer from maladies that are painful on a soul level and can be very isolating. There are days I can do little more than move forward. Most people around me never know this. They never see the pain of the restrictions surrounding my life due to circumstances beyond my control that only a tiny percentage of the population deal with. I just keep moving forward knowing life, no matter how hard, is worth living. Sometimes that is a very difficult thing to say or believe.

Some issues I have dealt with since I can remember – whether I was diagnosed or not. Some of them were diagnosed or came later. Diagnosis didn’t always make it better or easier, but it often provided some comfort that there was a path to take. Some wounds are new and very raw. Each of them can cause me to pity myself. Really, really pity myself. Then, I pick up the story of Job or even the Gospel. How can I even compare my problems with that of Job or Jesus? For that matter, for the suffering of many in either the Old or New Testament.

I also know I have a lot to be thankful for. A wonderful husband, home, and dog. Loving family that truly care what happens to me. A tolerable, convenient job – even if it isn’t too exciting or stimulating. I know too many people without even this. I have a wonderful group of friends who stood by me in some very dark times. Times when I was accused of losing my faith by those who don’t understand how complex faith really is. They mistook yelling, “Why me?” – or reacting in prayer as an adolescent acts towards a parent – as loss of faith. It is anything but that.

I know there are many who disagree with me about the idea that our faith must be constantly reexamined and that it is perfectly ok to yell at God in prayer as we are His children. (I have never met a healthy adolescent that always thought his or her parents were right! I know I certainly wasn’t, and I was considered not very rebellious.) It is ok to rail against your circumstances and ask God “why me?”

Often, the better question is “why not me?” Why should I be spared the pain that another is feeling. How is it that I am lucky enough to be living in a reasonably safe environment. That I have sufficient money and resources to meet and exceed my basic needs when many do not. Yes, dealing with food allergies is very expensive, but there are those with the same needs that cannot afford a decent diet due to the expense. Why am I able to work when others cannot? These are questions we are often too afraid to explore – much to our own detriment.

Think about those around you that you have some inkling what is not right in their life, but you don’t think about it. It could be the couple you know dealing with infertility, a friend diagnosed with breast cancer, a co-worker who has a family member die of an exceedingly rare disease, the man or woman who has not been able to find a job and has fallen prey to predatory lenders. Do a Google search on that problem. Read the facts, look at the blogosphere. Do not comment on someone’s blog if you are going to offer “pat” advice or admonition! You are doing research to better understand another viewpoint!

Once you have read up on that issue. The financial burdens, the social burdens, even the spiritual burdens, put yourself in the person whose problem you selected shoes. Imagine the frustration of getting advice like “always pay yourself first” when the bank has a lien on your home. Or, “just adopt” without realizing the invasiveness, expense, and complexity of modern adoption. Or, “it was meant to be” when someone had died of a disease affecting less than 1% of the population, making a cure expensive and without profit.

Now think what it would feel like to have that unhealed wound unwittingly irritated constantly by those around you. Doesn’t feel so good, does it? Just as the sufferer must rely on faith in God, those around him or her should learn the importance of empathy, of not looking at someone else’s issues and choices as affecting one’s own.  Actually, all of us need to learn and relearn this lesson over and over again.  I know I do.

Now, really, think about the idea of how you would want to be treated in a similar circumstance. You may never understand the completeness of the wound that person is suffering, but you can learn to “Do unto others as you would have them do unto you.”

This isn’t so easy or comfortable, is it?